SupercalifragilisticMULTIPLESCLEROSIS.
-
-
2013 MS Walk & Fun Run - Kelly McCabe Hey babies, as you know I have MS and so to shitloads of other lovely people. I’m doing the 5k Melbourne MS walk next Sunday so if you have the dollars to chuck a few my way that’d be a dream and if you can’t please share. Thanks <3 -
It’s True Romance.
-
MS/chronic illness friends.
How do you go about working out? Getting fit? Motivation?
Also, how do you get over bouts of intense bitterness and envy of healthy people and hatefulness and sadness.
-
My fellow MS’ers
Can you kindly tell me what medication you are on for it. I am on Avonex and depending on my upcoming MRI results I maybe changing that.
I would like to hear about what you take and your experiences on them.
Please and Thank you.So what’s your drug of choice?
I’m on copaxone and I cannot complain. Yes, you have to use it daily and it’s a bit impractical for traveling and at first few weeks it can be painful, but after that it’s good. I use it approximately one year and no side effects and with some practice injections are painless
I’m on Tysabri and can’t complain. It’s hard getting the the hospital every 4 weeks and it doesn’t stop every relapse (as can be shown by the fact I’m having one now) but this is my first and I’ve been on it for almost 2 years now (in August). No major side effects from it.
Tysabri. It’s all that i’ve been on and my yearly MRI showed only one new lesion that wasn’t active after a year on it compared to my 18 lesions when I was diagnosed.
-
Didn't the report say she died after a long battle with breast cancer and MS? Or did I hear it wrong??
Anonymous
She died after a long battle with breast cancer.
And she also had MS, which is a battle itself, however without the cancer it’s unlikely she’d have died today.
I don’t want them to not write that she had MS but it doesn’t help the MS community to be inflammatory.
-
Scampbelljar: Dear most articels RE: Chrissy Amphlett's death. She died of Cancer. Not MS and Cancer. You don’t die from MS you just get very disabled. Thanks.
Yes, you can die from MS. There are rare cases in which this happens directly, for a start, but regardless, the medications can put your body through hell and…
Uhm, I have MS and an Aunt who cannot live outside a nursing home because of MS disability. So I know quite a lot about it, and it’s treatment(s).
I am not “minimising” MS. Do you know how annoying it is to constantly explain what MS even is (it’s a muscle thing, right?) let alone the constant (unwanted) pity faces from strangers/friends/relatives. Let alone have a story covered by the media in the way that hers was.
My “just” was kinda tounge-in-cheek, y’know? Joking about things that are unpleasant sometimes give people relief. Maybe people don’t get on soapboxes about pneumonia, because pneumonia has a cure?
You don’t have to tell me that MS or Cancer are fucking awful. They are both heartbreaking, and can be torturous. But Chrissy Amphlett, bless her soul in rock n’ roll heaven, died of cancer (weather or not her MS made her body more unable to help fight it off or not).
It was a post directed at the media, not that MS isn’t a horrible illness or that it doesn’t suck that she had to endure both, but as a neurologist said to Tim Ferguson, “The good news is MS won’t kill you, and the bad news is MS won’t kill you”. So thanks.
-
Dear most articels RE: Chrissy Amphlett’s death.
She died of Cancer. Not MS and Cancer. You don’t die from MS you just get very disabled. Thanks.
-
Can people help me with cheap/good sources for binders that cater to larger breasted people (D/DD/E). Thanks!
-
Sidenote: the APA eliminated the term Asperger from their list and it is now only held under the umbrella of Autism (often referred to as high functioning). I can’t explain why though.
It is slightly bullshit. Functioning labels are actually really harmful to autistic people like myself because it measures our humanity on how non-autistic we are capable of appearing.
Autism is likely NOT more common in boys than girls; autistic girls just tend to be more socialized with “special interests” that are usually more artsy, like books, making art, even fandoms. As such, autism in girls frequently goes undiagnosed, often into adulthood, or just never being diagnosed at all.
So on that note, can we not act as if autism only affects children? That’s another really harmful and ableist attitude that only serves to infantilize us and makes people feel justified treating us like children.
And that segment about bullying is just many kinds of no. It’s pretty victim-blamey. Yeah, if only I didn’t have Asperger’s, then I totes wouldn’t have been bullied into an anxiety disorder as I got older. We’re also definitely the only ones who get bullied ever, thus this diagram specifically pointing it out. We’re also clearly incapable of sarcasm or even just simple communication.
And for the last fucking time, autists DO NOT LACK EMPATHY. THAT IS THE MOST BULLSHIT MYTH EVER. If anything, we tend to have more empathy than most people, which is WHY we tend to be introverts and not like a lot of social interaction, especially not with people who don’t respect us by claiming we lack empathy like we’re fucking psychopaths.
commentary
(via chlochloariadne)
